Advocacy
Advocacy can be many different things – you can advocate for direct care resources and programming for your brother and sister (medical care, funding support, access to activities, etc.) and/or you can advocate for changes to public policy and access to lawmakers who will directly impact the service delivery system budgets and programming initiatives.
Both advocacy avenues are equally important and can make a significant difference in the lives of our brothers and sisters.
As a sibling, you know what makes your sibling tick – use what you know to advocate for them and with them. You may get frustrated, and you will definitely need energy, time, and support. But rather than viewing the advocacy role as a burden, look upon it as an opportunity to make a difference in the life of your brother or sister.